Foot Feat

Not all things are created equal. We all know this. Doctors included, parents too. I’m not claiming to be the best mom. What I do claim to be is diligent when it comes to my son’s Clubfoot. He’s 11 months old and doing so well. I don’t want to jinx it!

Why’s he doing well? Because I’m diligent. He gets physical therapy two times per week. I put e-stim on his leg for 30 minutes most days. He wears his boots and bar (b&b) 15 hours per day. The road has been bumpy. I’ve had to research, argue, and travel (to Iowa) for proper care, but I did it. If I hadn’t, I’d regret it every day. If I saw my son limping or wearing different sized shoes, I’d always wonder if there was something more I could have done.

I see pictures of mistreated Clubfoot kids everyday. I do my absolute best to helpfully guide families to Iowa. Yes Iowa. No, there’s not someone just as good in Manhattan. Not Ohio, not Idaho, Iowa. Yes, My husband and I drove our family 19 hours away from New York to Iowa. We stayed at the Ronald McDonald House in Iowa City, Iowa. You know what? It was the best decision of my life so far.

After casts that slipped and a tenotomy in New York, my son had his final two (out of fifteen) casts in Iowa. The last two casts that Dr. M put on him were perfect. They were applied with finesse, a skill that few people in the entire world possess. Atypical feet are just that, not typical. My son was in b&b for 23 hours a day for 3 full months which started post Iowa, on July 18, 2014. After that we weaned down the hours slowly. He’s 11 months old now, his foot looks great. After emailing Dr. M a picture of my son’s Atypical Right Clubfoot today, the response I received back read, “ARE YOU SURE WAS THE RIGHT??? IT LOOKS BEAUTIFUL!… GOOD WORK KEEPING THE BRACES [on].” It may be miraculous, but diligence and good decisions made it reality.

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7 thoughts on “Foot Feat

  1. Hi

    I’m NOT going to drive my family to Iowa just to see yet another doctor. We live in NY, it is not practical. Plus Noah has too many doctors already. I refuse to take him all the way to Iowa only to be told nothing new.

    You may not know it but I have a life. Plus I have enough on my plate at the moment. I have to take Noah and Jonathon (sometimes) to various NYC doctors, sort out childcare, go to church and attend work.

    I get so little time to be alone. When do I get time to unwind and just be a mom? I’m really sorry but I’m not about to waste time driving or flying to Iowa for no reason ever. It’s completely senseless and pointless, yes it is.

    I can always email or telephone this doctor. FYI there are GOOD CF specialists in EVERY state. I’m in love with Noah’s orthotists, orthopedic surgeons and physical therapists at Boston’s Children’s Hospital. We are very lucky. Noah’s doctors and PT know their stuff. They also love Noah almost as much as we do. PS we think they are wonderful.

    • Completely disagree. Really hope your son’s foot is just a mild case of CF. Otherwise, when you run into issues, Dr. Morcuende is the way to go for sure. Personally, not amount of money or distance could keep me from the highest quality of care for my son. Best of luck!

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